The Wenatchee World Online
A good mom
by Rick Steigmeyer
World staff writer
Posted May 10, 2008
 Enlarge this photo

Every night, Cindy Flowers lifts her daughters, Heather and Heidi, from their wheelchairs to their beds. In the morning, she helps them back into their wheelchairs. Heather, in bed, and Heidi have spina bifida. The three live in a two-bedroom home in East Wenatchee.

Any mother will tell you, raising kids is a full-time job. That's especially true for Cindy Flowers, whose two daughters require 24-hour-a-day attention. Nothing so unusual about that except her daughters are adults. Both have spina bifida and will require help the rest of their lives. Heather Flowers is 28. Heidi Flowers is 27.



 ENLARGE
Cindy Flowers washes Heather's hair in the kitchen sink. It is easier for Cindy to use the sink because their bathtub isn't set up for wheelchair use.

That's not a problem for Cindy, who long ago understood her life would revolve in a tight orbit around her children. Cindy, who is 50, does worry at times, as do they, about what will happen to the girls if something happens to her. But mostly she feels fortunate to have a close relationship with her daughters, that they are in relatively good health, mentally high functioning and that she is there to offer them everything a mother should.


"They're the wind beneath my wings," she said, quoting a favorite song. "They're the reason I can fly. Some people think they must be a burden, but without them I would be a sparrow. With them I feel like an eagle. I feel very lucky."


 ENLARGE
Heather, left, and Heidi Flowers help their mother clean the Oneonta building. Their job is to empty trash cans throughout the office. (World photos/Kelly Gillin)

"I don't know what I'd do without her," Heidi said about her mother. "I worry about what would happen to us if she was not around."


Heather and Heidi use hand-powered wheelchairs to get around. Together, they've undergone more than 175 operations to mend a long list of problems related to spina bifida, a birth defect that involves incomplete development of the spinal cord or its covering.


In spite of their disabilities, Heather and Heidi have become active volunteers who have won praise for their community work. They've volunteered with local churches to offer respite care for Alzheimer's disease patients, been greeters at annual bridal shows, the KPQ Home Show and the Wenatchee Festival of Trees. They've volunteered at Central Washington Hospital and for the past six years as teaching assistants at East Wenatchee elementary schools. They've been poster girls for the Chelan-Douglas March of Dimes fundraising campaign. They were awarded the Spirit of America award by the local Take Pride in America group in 2006 for their many volunteer efforts.


"I don't even think of myself as being in a wheelchair," said Heidi, the more talkative of the two sisters. "I know I am, but I'm not. It's just normal."

"I can admit that I hated being in a wheelchair. I would cry. I wish I could walk," said Heather, adding with a smile, "I'm OK with it now. My goal is to walk. If I don't, I'll get married and have my husband carry me."


Cindy said she encourages the girls to fight the depression that can come with their condition and makes sure they get out of the house regularly to interact with others.


"I tell them to remember to radiate sunshine," Cindy said. "If you radiate sunshine everyone wants to be around you. If you radiate storm clouds, who wants to be around a storm?"


A rare condition, twice


Cindy Flowers had never heard of spina bifida when she found out her firstborn child was born with the condition 28 years ago. She was 22 years old and thought having a baby was as simple as going into the hospital to deliver and then coming home a day later with a newborn.


Instead, there were complications. Cindy was admitted to Central Washington Hospital for an early Caesarean section delivery. She was told her 3-pound daughter had spina bifida. While Cindy stayed at Central, her newborn, Heather, was taken to a Seattle hospital.


"It was very difficult to hear the other mothers with their babies and not have mine. I didn't even know what spina bifida was," Cindy said.


A year later, she knew all too well. Heather had spent much of that time in the hospital undergoing numerous operations. When Cindy became pregnant again, she consulted doctors early about the chances of having a second child with the birth defect. Doctors assured her that would be extremely rare. Only one in 1,200 babies are born with spina bifida. It's nearly unheard of that two would be born in the same family. She underwent several tests before the birth that showed her second child would not have the defect. The tests were wrong.


"It was devastating," she said. "It's very sad when both of your babies have something wrong with them."


The following years were difficult. The girls underwent dozens of operations to correct the many complications that come with seriously abnormal development of the spinal cord. Both girls had steel rods planted in their backs to reduce curvature of spine. Doctors had hoped there would be something they could do to enable the girls to walk, but that wasn't the case. Cindy's husband couldn't handle the strain of raising his two daughters. His drinking became worse and he was uninvolved as a parent, Cindy said. As the girls grew older, Cindy tried to get her daughters out as often as possible so they wouldn't become reclusive and depressed and so they could see themselves as valuable members of the community.


Unconditional love, full time


Fast forward 27 years, more than 175 operations, a divorce and thousands of miles of travel between East Wenatchee and Seattle hospitals. Cindy is the full-time caregiver for her two daughters who are on state disability. That provides the trio with some income in addition to the custodial service they perform each weeknight with Cindy's parents for Oneonta Trading Corp. in Wenatchee.


Cindy drives the girls to doctor's appointments, volunteer work and teaching assistant roles each day in their well-used 1991 Dodge van. They go out to country and gospel music concerts, Seattle Mariners games and every local sporting and entertainment event they can fit it. They go everywhere together. "We're like three peas in a pod," Cindy said.


Their modest two-bedroom house has a wheelchair ramp to the front porch, but otherwise is poorly adapted to handicapped use. Although they've lived in the house 20 years, Cindy still pays $1,200 a month on a second mortgage. That leaves her little money for home improvements. The best thing, she said, may be to knock down the 1940s house and replace it with a manufactured home. They made a video last year and sent it to the TV show "Home Makeover," but never received a response. "There are a lot of people with greater needs," Cindy said.


Cindy helps the girls with daily sponge baths or lifts them in and out of the bathtub because the shower in the tiny bathroom isn't handicapped accessible. She lifts them on the kitchen counter each morning to wash their hair in the sink. She cooks all their meals because they're not tall enough in their wheelchairs to use the stove safely.


The girls share one small bedroom. Its walls are covered with autographed photos of the country musicians they've gone to hear. Heather sleeps on a special air mattress with its own compressor so she doesn't injure her spine. Their mom lifts both girls into and out of their beds at night and helps them dress each morning and evening. A baby monitor in the room lets Cindy check on the girls' breathing through the night. Both were diagnosed two years ago with sleep apnea. A breathing device now makes sure they have enough oxygen to sleep through the night, but Cindy still fears the machines will stop working.


"It's a full-time job 24 hours a day. To get a solid three hours of sleep is rare," she said. The girls can be left home alone for awhile in the afternoons if Cindy needs to run errands. Occasionally, she will ask a friend or relative or hire another caregiver to stay with the girls for awhile. "But it's hard for me to ask someone else to do what I'm supposed to do as a mom.


"I think God gave me Heather and Heidi for a reason. I think He was looking down on me and thought, 'She would be a good mom,' " she said. "They're special and unique. They've shown me unconditional love."


Heather said she and her sister wish they could do more for themselves so their mother didn't have to strain her back lifting them so often.


"She's been with me through everything, so many times in the hospital," added Heather. "I'm not sure I'd want to live without her, but she always tells us not to give up. She's a good mom. She's the best. I love her."


Rick Steigmeyer: 664-7151


steigmeyer@wenworld.com


COMMENTS

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I'm always amused by the presumptive nature of a person who assumes what someone has, or has not, experienced in their life, and then decides to use that assumption as the basis of rational argument.

No one has stated that the house shouldn't be remodeled to make life easier for Cindy. Nor has anyone suggested that Cindy take a second job. Those are red-herrings to the issue of why the knee-jerk look to government to solve problems? I have faith in PEOPLE and communities to take care of their own.
Martin Reginald | May 14, 2008 12:35 pm | Request Removal
Once again coming from someone that obvously hasn't been there. I'm not trying to offend anyone here. I definitly agree that she is doing what she can with what she has and I commend her for that. All I'm saying is its hard to go out and get a second job or a better paying one when the one you have demands so much of your time. Its a catch 20 here. If she injures her back due to lifting then who will take care of her daughters. Its actually cheaper if the house is fixed up instead of having to hire a caregiver to take care of both women in the event the mother gets hurt.
Cynthia Burgess | May 14, 2008 9:48 am | Request Removal
No one said anything about Cindy not asking for help; I'm sure she has asked for government help throughout the entire time her children have been alive. The issue is the knee-jerk look to government to solve problems. It doesn't take government to get involved here, it takes individuals with a willingness to donate money and building skills. Why is government the only solution? It is a testament to Cindy's personal character that she will not look to, and depend on government for her well-being. She is an example of what is best in the American spirit.

The fallacy of relying on government instead of doing what Cindy Flowers has been proudly doing -- taking a bad circumstance and putting one's self in control -- results in a people that are little more than sheep. They will not do anything for themselves and are willing to wait for government to take care of them. Katrina and the pathetic scenes at the New Orleans super dome are ample witness of this.
Martin Reginald | May 13, 2008 11:13 am | Request Removal
I'd be happy if my hard earned taxes went to help this women and her family. There are programs to help imagrants but not to help our own. Some people have lived privliged lives and never had to struggle or know what it's truely like. There is absolutley nothing wrong with asking for help when its needed. Why hasn't their casworker done anything to help releive the situation. That is what their job entails.
Cynthia Burgess | May 13, 2008 7:05 am | Request Removal
Cindy said that she had sent a video to Extreme Makeover Home Edition. Maybe her friends need to rally and back up her request by nominating her and her daughters. Their website (accessible from ABC's website) has a form to print out for doing that. They are certainly as deserving as anyone. Maybe sending them this article would help, too.
Jen Parker | May 12, 2008 10:47 pm | Request Removal
Why does the only solution have to be a government program for help? Why can't charitable organizations or private fundraisers be the solution to a handicap accessibility remodel? Why can't you organize a fundraiser and seek out other charitable avenues? It doesn't appear Cindy Flowers is waiting for government; she's digging in and depending on herself -- as a rugged and capable individual -- to take charge of her hardship situation.

It is so easy to broadcast one's pity and whine about the lack of a government-dictated solution. It is quite another to turn meaningless words into meaningful action.
Martin Reginald | May 12, 2008 11:48 am | Request Removal
There has to be some programs to help this women make her house handycapped accesable. This women is wonderful. What a great mother!!!
Cynthia Burgess | May 11, 2008 11:15 am | Request Removal
That family is amazing!
Erin R | May 10, 2008 12:07 pm | Request Removal
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